Sharing with Family Improved Quality of Life

My Story – Submitted by: Rick

I want to share my story with you and hopefully I can help others deal with the same.

Don’t get down. Do what you have do. I’m married and have a understanding wife, and family. When I started having accidents, day, and night, I went to get help, and doctors could not find anything wrong. It left me with few options. I refused to wear anything, but that only caused me to isolate myself. My loving wife took over and encouraged me to get out and off the couch. She said no one will laugh at you. Let’s have a family meeting with everyone and just tell them how bad your problem is and that you now have to wear diaper all the time. When we told them, they all seemed shocked but said, “It’s OK.”Continue reading

One Woman’s Fight Against Stigma

My Story – Submitted by: Reina

One night, a couple of months back, I was watching Jon and Kate Plus Eight. I love that show and think it is fascinating to folow the lives of that family. I also love the way they do things together. Their family is so precious. They are so lucky. However, one particular episode struck a nerve but inspired me at the same time. And, I thank the family’s show prefusely for getting the fire ignited that is responsible for getting the ball rolling.Continue reading

One Woman’s Fight Against Stigma (An Update Three Years Later)

My Story – Submitted by: Reina

You guys probably recall me sharing a story about my finally accepting my incontinence and no longer being ashamed. In that story, I stated how I saw a particular episode on John and Kate Plus 8, and it gave me a desire to engage in efforts to educate the world about incontinence, letting people know that there is no need to be ashamed of having the condition and that it does not have to rule their lives. Well, I’m back to give you all an update. I know it has been awhile, but here it is.Continue reading

Living Without Egos

living without egos“Living With Quiggles” has covered a wide range of stigma issues such as the impact of staring; how language stigmatizes; the decision to attempt to “pass” in society by keeping a health challenge or disability hidden; the reactions when the birth of a baby brings an unexpected Quiggle into a family; and many other subtle issues of stigma in healthcare.

For the most part we’ve explored stigmatization as it applies to strangers who connect briefly as they stumble upon one another while going about their daily lives.  But how does one handle stigma when the dynamics become more personal and the relationships closer? How do our egos interfere?Continue reading

Bitter or Better?

NBA basketball

Bob Love was an NBA basketball player who lives with a Quiggle.

Most of us vividly remember our very first jobs even though they weren’t likely to have been in the proverbial mail room.  My first was walking beans, unless of course you count the Christmas when I was five and started wrapping Christmas purchases sold in my father’s small town men’s clothing store.  The pay at the time was a daily trip to see Santa in his special little house which was set up each Christmastime on the lawn of the court house.  Since no dollars changed hands, I think that walking beans really qualifies as my first job.

For you city folk, walking beans means being up long before the sun, rushing to a designated pick-up spot in town, riding in the back of an old pick-up farm truck to the fields where you will then spend 14 hour days walking  acres and acres of rows of beans, cultivating the soil, and removing the invading corn plants.  “Blazing sun” and “dog days of August” took on an entirely new meaning within a day of starting my first job.  The compensation was bragging rights at school in the fall that you hadn’t whimped out and, if memory serves, $.50 an hour.

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Living with Spina Bifida

My Story – Submitted by: Anonymous

I was born with spina bifida. I was also one of the lucky ones – I could walk, even run, and never suffered from hydroencephalitis (water on the brain). I am also urinary and fecal incontinent.

At the age of 3 years, I had a urinary diversion surgery called an illial [ileal] loop done. I wore a urinary bag until I was 18. Kids can be cruel. In addition to the normal teasing that goes with growing up, I also had to deal with being shunned due to the bag springing leaks, as well as regular accidents from the bowel incontinence. You can probably imagine how bad things got. When I was 18, an artificial sphincter was installed on my bladder – I still had to self-catheterize to pee, but at least I didn’t have to wear that damned bag.

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2015 John J. Humpal Award Presented to Kaoru Nishimura of Japan

Kaoru Nishimura

Ms. Kaoru Nishimura, RN, received the 2015 John J. Humpal Award.

The Simon Foundation for Continence recently presented the 2015 John J. Humpal Award to Kaoru Nishimura, RN, the Founder of the Japan Continence Action Society (Tokyo, Japan). The award was presented at the Foundation’s fifth biennial Innovating for Continence: The Engineering Challenge conference, hosted April 15-17 at the Millennium Knickerbocker Hotel in Chicago’s city center.

Chicago, IL (PRWEB)  May 26, 2015 — Professor Christine Norton, RN, PhD, Honorary President of the Innovating for Continence Conference 2015 and a leading authority on bowel/fecal incontinence, presented Ms. Nishimura with the John J. Humpal Award at the Foundation’s conference dinner. The fifth meeting in the Innovating for Continence series attracted delegates from around the world, including participants from Australia, Germany, Canada, the UK, Sweden, Ireland, the Netherlands, Japan, and throughout the USA.Continue reading

Poster Awards Presented at the 2015 International Innovating for Continence Conference

Three poster awards were presented by The Simon Foundation for Continence to posters authors at their fifth biennial conference in Chicago, reflecting excellent and varied research in this challenging medical field.

Chicago, Illinois (PRWEB) May 06, 2015

The poster entitled “The Stigma Associated with Urinary Continence: The Impacts on Self-Perception for Older Women,” by lead author Kenneth Southall (McGill University, Montreal, Quebec, Canada), was awarded first place at the April 15-17, 2015 international conference Innovating for Continence: The Engineering Challenge. Continue reading

Rick Rader, MD, Defeating Stigma in Healthcare Award Recipient for 2013

Rick Rader, MD

Dr. Rick Rader accepting the Defeating Stigma in Healthcare Award

Chicago, IL, May 11, 2013 –(– The Simon Foundation for Continence recently announced Rick Rader, MD, as the 2013 Defeating Stigma in Healthcare Award recipient. Dr. Rader is the Director of the Morton J. Kent Habilitation Center at the Orange Grove Center (Chattanooga, TN), a nationally known community agency supporting the needs of individuals with intellectual and developmental disabilities.Continue reading