people focus group

Focus Group Opportunity in the Chicagoland Area

If urinary incontinence is affecting your life, please help The Simon Foundation for Continence understand your challenges and give your input to help design a new program we are creating. The study focus groups are 90-minutes long and will take place in June 2019. Current locations are: Evanston, Chicago and Forest Park, Illinois.Continue reading

northshore supply

NorthShore’s Revolutionary Adult Diaper is Designed to Reduce Stigma Surrounding Heavy Incontinence

Over 80 million adults in the U.S. manage some level of urinary or bowel incontinence, and many millions more will be faced with leaks and loss of control later in life. The good news is many of these symptoms are treatable or can be managed using incontinence pads bought in stores. But what if that isn’t enough? For people who have heavy incontinence and need stronger, more absorbent products than those found in stores, their options have been limited to clinical hospital-like briefs. Until now. Earlier this year, NorthShore Care Supply, a Buffalo Grove Illinois-based company founded to empower those with heavy bladder or bowel leakage, unveiled its popular SupremeLite™ absorbent brief, now in vibrant shades of blue, green and purple. Read more.

Source: Newswire.com., April 23, 2019

patient education OAB

Free Interactive Education Program Announced for Those Living With an Overactive Bladder

According to the American Urological Association, approximately 40% of women and 30% of men live with overactive bladder or OAB. Many people with OAB find it difficult to talk to their doctor or loved ones about their condition because of the stigma associated with it. Pro-ficiency, a leading provider of interactive online patient education tools, announces its collaboration with the Academy for Continued Healthcare Learning (ACHL) and the Simon Foundation for Continence, in their joint, interactive program, to educate people about how to speak with their healthcare providers and their loved ones to get the care they need. The program also discusses treatment options, how to manage social and lifestyle considerations, and incorporating shared-decision making into visits with health care providers. The program is freely available to all participants.  “ACHL & Pro-ficiency previously collaborated on a highly successful OAB educational activity, however, given the depth and breadth of OAB, it was clear that continued education was needed. ACHL is proud to continue the education movement with this most recent program,” adds Amanda Kaczerski, with ACHL. Read more.

Source: Newswire, November 5, 2018

exercise women

Nearly Half of Women Over 50 Experience Incontinence, but Most Haven’t Talked to a Doctor

Nearly half of women over 50 say they sometimes leak urine — a problem that can range from a minor nuisance to a major issue — according to a new national poll.  Of more than 1,000 women between the ages of 50 and 80 who answered the poll, 43 percent of women in their 50s and early 60s said they had experienced urinary incontinence, as had 51 percent of those age 65 and over. Yet two-thirds of these women hadn’t talked to a doctor about the sometimes embarrassing, little-discussed issue. And only 38 percent said they do exercises that can strengthen the muscles that can help keep urine in. The poll shows they’re finding ways of coping on their own – from using pads or special underwear to wearing dark clothing and limiting fluid intake.  Read more.

Source: MHealth Lab, OCtober 31, 2018

silence, stigma, taboo

Time to Tackle ‘Taboo’ Over Continence Issues, Warn Charities

The 10 charities, including Alzheimer’s Society, Age UK, Marie Curie, warned that the taboo around the topic forces those affected to struggle in silence and more research is needed.  As a result, the organisations held a workshop where common problems and solutions for incontinence issues were discussed by patients, carers, researchers and clinicians. Others involved include Parkinson’s UK, Guts UK, the Urology Foundation, Devices for Dignity, the National Institute for Health Research, and the James Lind Alliance. A report based on the meeting – titled My bladder and bowel own my life and published today – recommends tackling the stigma and funding research into the issue. Read more.

Source: Nursing Times, August 22, 2018

microbiologist at laboratory work

Technology for Incontinence Hasn’t Developed That Much Since Ancient Egyptian Times

Today’s healthcare is full of technology that would seem like science fiction to our grandparents. But this is far from true in every area: some remain woefully neglected by innovation. Hop in a time machine back to ancient Egypt and you would find recognisable examples of the absorbent pads and catheters which are still a mainstay in the management of incontinence today.  The earliest known reference to an absorbent pad dates from 4th-century Egypt: the female scientist Hypatia is recorded as having thrown her menstrual rag at a student to ward off his infatuation with her. The pad remained a homemade “product” for many centuries until the 19th century, when manufactured versions of reuseable “antiseptic cotton for absorbing discharges” could be purchased from pharmacies. Disposable pads, first produced by Kotex in 1920, were in widespread use by the late 1930s. Since then, the only major innovation in their design has been the introduction of super absorbent polymers in the 1980s, which have dramatically improved absorbency. Read more.

Source: The Conversation, July 30, 2018

Finding Freedom and Eliminating Stigma

My Story – Submitted by: Waldo

This story was originally published in the Danish magazine Vertel.  You can access the original story and photos here: https://www.medireva.nl/wp-content/uploads/MEDIREVA-Vertel-lente-versie.pdf

Here is the author’s English translation, which he has asked that we share with you.

Dear reader,
I would like to share my personal story with you. I want to contribute to the elimination of the stigma and the taboo around incontinence. Continue reading

catheter coating research

Incontinence Affects More Than 200m People Worldwide, So Why Isn’t More Being Done to Find a Cure?

For a chronic health condition that causes shame and misery for countless people and costs billions, urinary incontinence keeps a low profile.  Media reports about chronic health conditions appear with alarming regularity, but it is rare to read about the debilitating impact of the involuntary leakage of urine. Nevertheless, urinary incontinence is a condition which, next to Alzheimer’s or strokes, is reported as most negatively affecting “health-related quality of life”.  The reasons for this are not too hard to fathom. Urinary incontinence, of course, elicits some embarrassment. And there also seems to be a feeling this is a low priority condition: urinary incontinence does not directly bear up against the terrible impacts of life threatening conditions and illnesses. Read more.

Source: The Conversation, February 14, 2018

woman India

Friends Adult Diapers Flags Off Its First Ad Campaign

With the campaign, Friends Adults Diapers aims is to blow the lid off the issue and show how liberating life can be again for a senior who is homebound due to incontinence.  Adult Incontinence is considered a taboo across in India, it is brushed away under the carpet and ignored like it doesn’t exist. The brand has launched the country’s first ever campaign for the category, bringing the spotlight on the subject, in a unique light-hearted manner that’s bound to resonate with people across the country.  With the campaign, Friends Adults Diapers aims is to blow the lid off the issue and show how liberating life can be again for a senior who is homebound due to incontinence; how one product can bring about a life-altering change in the lives of our elders and how accepting the problem and its solution can leave the senior citizens with happiness and freedom in the last leg of their lives.  Read more.

Source: ETBrandEquity.com, November 24, 2017

national monument Scotland

Tackling the Taboos – Alex Cole-Hamilton Leads Holyrood Debate on Incontinence

As we reported last month, Alex Cole-Hamilton brought a motion calling for a National Continence Strategy to the Scottish Parliament. It was debated yesterday. Here is Alex’s speech. He is pictured here with Elaine Miller, his constituent whose show Gusset Grippers highlighted the issue at this year’s Edinburgh Festival.

If we ask anyone in this chamber or beyond it what their top five fears of age or infirmity might be, we can be sure that the subject of this debate will sit right up there. However, I state from the outset that, if we, as legislators, assume that incontinence is a condition only of the old or infirm, we are mistaken and are part of the problem. I called for the debate because women and men of all ages suffer in silence. It is high time that they are made aware of, and given, treatment, support and—most important—hope. Read more.

Source:Liberal Democrat Voice, November 17, 2017