A Neurogenic Bladder Due to Marfan Syndrome

My Story – Submitted by: Carl

I first noticed urinary leakage in January, 1985, and simply changed my pjs and underwear. However, within weeks, I found myself changing my underwear several times each day, and staining my bed sheets. After my first accident, I panicked, went to my PCP, and was referred to the first of a series of urologists, none of whom took my situation seriously. The urinary pain began almost simultaneously with the onset of the incontinence, though the spasms were infrequent and not really painful; they were just bad enough to get my attention. I joined the Simon Foundation and through it discovered folks, whom I later discovered to be AB/DL, who patiently taught me much of what I would need to know to get through life as an incontinent. Though I am not one of their number, I owe them much.Continue reading