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Introducing an Online Community to Provide Support to People with Incontinence and Their Caregivers


The Simon Foundation for Continence has launched a support community on the HealthUnlocked network.

The Simon Foundation for Continence’s has a new online community that will provide valuable support and information to people living with incontinence. It will do this by helping them to learn how to manage their incontinence and improve their quality of life through shared knowledge and support received within the online community. This site will also be of great value to those who have a friend or loved one with incontinence, or for those who are caregivers (at home or in a licensed facility).

The Simon Foundation for Continence seeks to bring the topic of incontinence out into the open, remove the stigma surrounding incontinence, and provide help and hope to people with incontinence, their families and the health professionals who provide their care. This online community is a natural extension of the Foundation’s mission.

The online community provides The Simon Foundation for Continence with an online space for people with incontinence to visit and access support and information from others with the same condition, along with expertise from the Foundation. It will drive better health outcomes for people living with incontinence.

By coming together online, people will also benefit from HealthUnlocked technology, which makes tailored health related recommendations, directs people to useful information, connects them with others like them, and highlights research activities, such as clinical trials, that may be of interest.

According to Elizabeth LaGro, VP of Communications and Education Services with The Simon Foundation for Continence: “The online support community will offer people a safe space to interact with others, potentially changing their lives for the better. This will be a place where you can come to talk anonymously about the health issues affecting you – whether you have urinary or bowel incontinence or are a caregiver for someone with these conditions. Because of the stigma associated with incontinence, there are currently very few in-person support groups for people living with incontinence. We believe this online service provides a valuable and a much needed resource for many people.”

Chief Medical Officer of HealthUnlocked, Matt Jameson Evans, states: “Support and information are one of the largest factors in people managing their own health. Our communities provide vital support, allowing people who are experiencing similar health issues to ask questions and receive information. This new community has the opportunity to transform and dramatically improve the lives of many people.”

The Simon Foundation for Continence invites you to visit this new resource at:

About the Simon Foundation for Continence
The Simon Foundation for Continence (, located in Chicago, Illinois, USA, and is a 501(c)(3). The Simon Foundation for Continence is the world’s oldest patient-led organization devoted exclusively to incontinence, having been founded in 1982. The Foundation’s mission is supported by an Advisory Board of professionals, many of whom have dedicated their careers to improving the clinical treatment of incontinence and advancing medical science through bladder and bowel research.

About HealthUnlocked
HealthUnlocked is the largest social network dedicated to health in the world. It has over 600 health-specific communities, 3.5 million monthly users, and its own health-specific Artificial Intelligence. It connects patients with conditions like arthritis or cancer to solve day to day challenges together. Clinicians, the UK National Health Service (including NHS Choices), insurers and industry can use HealthUnlocked to link up with patients safely online. It is changing how healthcare can be delivered, developed and managed.

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