Contacting Us & Your Privacy


Our Printed Newsletter

To request a copy of the latest edition of our The Informer newsletter, other information related to incontinence, and/or emotional support, please contact us by email at

Share Your Story

If you would like to share your personal story with us, you can do it here.


Please, take our surveys about incontinence here.writing contact us

Write to Us

The Simon Foundation for Continence
Post Office Box 815
Wilmette, Illinois 60091

Phone Numbers

Toll free Information Number: 1-800-23Simon (237- 4666)

Chicago Headquarters Main Number: 847-864-3913

Chicago Headquarters Fax Number: 847-864-9758

E-Mail Us

President and Founder, Cheryl Gartley:

Vice President, Communications and Education Services, Elizabeth LaGro, MLIS:

Director of Special Events, Twila Yednock:


You can also message us on our Facebook page!

Confidentiality & Your Privacy

All names and addresses provided by visitors to the Simon Foundation for Continence website for the purposes of receiving requested information from us are kept strictly confidential. Unless required by law, we will not disclose, sell or share your individual personal information with others outside our organization.

Information gathered on our Survey and Contact Us areas are for the purpose of helping us identify topics that are relevant for our website visitors, and to help clinicians, investigators, and manufacturers as they determine directions for research and treatment development. This information comes to us anonymously – your email and any kind of identifier is not sent to us when you complete a survey question, and we have no way to contact you or know who you are.

If you have shared personal information with us to request information be mailed to your home, we will use address information for the requested mailings.  We will retain your address for 24 months, and then discard it, or sooner if you so request, because we may wish to re-contact you with new information on continence that we believe may have value to you or to ask for your support of the Simon Foundation for Continence.

If you do not share email or mailing information with us, we will not and cannot contact you.

Google Analytics is used on the website and it collects anonymous data so that we can make improvements to the visitor experience. Google Analytics reports anonymous user location information that is derived from your IP address or Google Account. Personal information submitted on forms is not reported to Google Analytics.  This information is retained for only 24 months.  You can learn more about how Google collects and processes your data, by visiting   You can also prevent Google Analytics from using your information. You can do this by opting out at this link:

If you sign-up to receive our e-newsletter, your information is held in a database on Constant Contact (they are GDPR compliant) so that we may continue to send emails to you.  You may unsubscribe from this service at any time by either contacting us, or by unsubscribing when you receive an email from us (located at the bottom of the email).

When you make a donation, our payment processing software will collect some or all of the following information: first and last name, your billing address,  physical address, credit card or other payment information. This purchase information is kept by the processor for three years to ensure proper payment and crediting of accounts.  We will retain information on your donation for as long as the US IRS legally requires us to do so.

The Simon Foundation for Continence website uses cookies (a cookie is a small piece of data or a text file that is downloaded to your computer or mobile device when you access certain websites). When you agree to accept our use of cookies, you are giving us, and the third parties that we partner with, permission to place, store, and access cookies on your computer.  You can also reject the use of cookies, but this may mean that some functionality of our website will be lost to you, the end-user.

If you have any questions or concerns regarding how we collect, use or retain information, please do not hesitate to write to us at