Living with Spina Bifida

My Story – Submitted by: Anonymous

I was born with spina bifida. I was also one of the lucky ones – I could walk, even run, and never suffered from hydroencephalitis (water on the brain). I am also urinary and fecal incontinent.

At the age of 3 years, I had a urinary diversion surgery called an illial [ileal] loop done. I wore a urinary bag until I was 18. Kids can be cruel. In addition to the normal teasing that goes with growing up, I also had to deal with being shunned due to the bag springing leaks, as well as regular accidents from the bowel incontinence. You can probably imagine how bad things got. When I was 18, an artificial sphincter was installed on my bladder – I still had to self-catheterize to pee, but at least I didn’t have to wear that damned bag.

Continue reading

Using Kegels for Bowel Incontinence

My Story – Submitted by: Anonymous

I developed bladder incontinence years before I began to have bowel incontinence. The bladder incontinence began in my late fifties, and the bowel at age 61.

Neither of them were due to accident, disease or other outside causes. Perhaps they were inherited, as I know my mother had bladder incontinence in her later years. I don’t know if she had bowel incontinence, and I no idea whether my father suffered from either condition.Continue reading