Living with VACTERL Association

My Story – Submitted by: Gerald

I was born in 1957 with VACTERL Association. I have a Klippel-Feil in both my cervical spine and lumbar spine (L1-L4 congenitally fused), a syrinx in lower cervical spine, urinary tract fistulas, imperforate anus, and a horseshoe kidney. I have a history of distension, pseudo-obstruction (for which I have been hopitalized and NG’d several times), two obstructions due to adhesions, and these were surgically repaired. I also have a syrinx in my lower cervical spine which is stable. I was also born with an imperforate anus and required a pull-thru at birth. I had laminectomies in both my cervical and lumbar spines (L1-L4 is congenitally fused with hemi-vertibrae, scolioses, severe stenosis in the foramen and central canal). I have a horseshoe kidney but do not have any renal issues that I am aware of, though I am prone to UTI’s. I am largely incontinent and have severe motility problems and am sometimes unable to pass stool for a week at a time. Continue reading

Living with Primary Nocturnal Enuresis

My Story – Submitted by: Anonymous

I have had to adapt to my surroundings and develop an intricate “cover” for the reasons why I do things, why I have never “slept over”.

When I go camping I always have two sleeping bags. I will sleep in my own tent and will swim in a freezing river early in the morning.

I can stay awake all night at my girlfriend’s house and she never knows, but I can’t stay there for more than two nights in a row.

Walked 20 kilometres home from a party because I dozed off.

Why do I keep my bedroom door shut and get up before everyone else in a shared house? They all think I’m a clean freak because I do the washing every morning and always wash my sheets. They tell me that I shouldn’t freak out about bed bugs.

Just a few situations that primary nocturnal enuresis has put me through.Continue reading

Learning to Live with Bladder and Bowel Incontinence

My Story – Submitted by: Shawn

Hello all! My name is Shawn and I am 39 years old and I am bowel and bladder incontinent. This started for me about 2 years ago. Well, l started out driving dump trucks for months and theses guys were dropping 2-3 thousand pound rocks into my truck. Jarred the snot out of me and knocked the wind right out of me several times. I started having issues with balance, feeling lightheaded all the time, blood pressure issues, couldn’t think or reason. And then one day I was sitting in bed talking to my wife, and wammo! I was wet. Soaked! Started having issues during the day peeing my pants and started wetting at night.Continue reading

Life is More

My Story – Submitted by: Gary

My story is simple yet it has its moments. I did not have any incontinence difficulties until I injured my back at work 4 times in 1 year. The doctor said it was nothing major after looking at the x-rays and sent me on my way, workmans comp covered the cost since I was hurt at work. These injuries occurred several months apart. I cannot say exactly when it all started but I woke up one morning with a slightly wet bed. I attributed it to excessive night sweating and forgot about it. Continue reading

Incontinence Following Motorcycle Accident

My Story – Submitted by: Mike

When I was in my 20’s I had a bad motorcycle accident injuring my bladder and making me incontinent. I am 49 now and have worn adult diaper protection”just in case” for so long it’s normal to me, I look at them as just thicker underwear. Continue reading

Happiness for Man with Underdeveloped Bladder

My Story – Submitted by: Charles

My name is Charles. I wear diapers 24/7 because I was born 3 and a half months early. I am getting married Saturday, September 26, 2009 to a nice young lady. She accepts my problem. She even helps me change, no matter where we are.Continue reading

Growing Up With a “Quirky Bladder” Caused by Benign Tumor

My Story – Submitted by: Michael

I grew up with what my family, friends and I thought was simply a quirky bladder. I had difficulty with toilet training and, due to frequent bed wetting incidents and daytime accidents, wore training pants and plastic pants through first grade. Although I learned to conceal my problem, several years ago it became bad enough that “a quirky bladder” was no longer an acceptable description. Continue reading

Gallbladder, Kidney Stones, and Incontinence

My Story – Submitted by: Anonymous

I’ve always had some bedwetting problems, but in the last few years they have become worse due to the fact that I have passed several kidney stones over the years, and it has affected my kidneys, and caused me to wet the bed more than usual. I have tried several different things, and none of them seem to have any affect on the bedwetting problem. Continue reading

A Christmas Gift

My Story – Submitted by: Nancy

It was April 2012 and I was 48 years old. I had been struggling with back problems-herniated disc on the shoulder and middle of the back and a continuing gnawing in my pelvic area. After many MRI and CT scans the doctors recommended physical therapy and an occasional pain med. As I actively participate in my doctor’s program I did have relief in my back. However the gnawing feeling in my pelvic was not correcting itself. Then one day while waiting for my physical therapist in the waiting room I had my first incident of bowel incontinence. I was mortified! I saw my pain management doctor that day. The next few days were filled with nerve tests and CT Scans. Nothing showed up on the tests. Though I kept having bouts of bowel incontinence. I was also losing weight and very fatigued. Finally I began searching the web for help and found Simon Foundation for Continence. This was my life saver. I read many articles on the site and one of them suggested seeing a gastroenterologist for medications and to be given a diet.Continue reading