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Incontinence Solutions

NexProfiler Decision-Support Tool
Diaper Banks
Not-for-Profit Organizations and Free Information Resources

Commercials, advertisements and on-going public education by not-for-profit organizations like the Simon Foundation for Continence have contributed to people with incontinence becoming more aware of the increasingly diverse options available for the treatment, cure, and management of incontinence.  This awareness has lead to an increased demand for additional information that goes beyond what can be learned from advertisements. 

Below is a link to a tool to help women with urinary incontinence decide on treatment options called NexProfiler(TM) Decision-Support Tool. The causes and effects of incontinence are different for each unique situation. For assistance in sorting out treatment options that may work for women, try the free Profiler Tool.

NexProfiler 

If you are using adult absorbent products, such as adult diapers, but are experiencing financial hardship, you may have access to a local Diaper Bank for assistance. For more information on Diaper Banks, click here.

Below you will also find links to key not-for-profit organizations that provide information on incontinence to enable you to learn more about treatments and management techniques.

NOTE: The information included on this website is not meant to be a substitute for medical care.  Incontinence is a symptom.  Always report incontinence to your healthcare professional and ask to be evaluated to determine the underlying cause of your incontinence.


Not-For-Profit Organizations and Free Information Resources


The American Urogynecologic Society
The American Urogynecologic Society (AUGS), founded in 1979, is the premier society dedicated to research and education in urogynecology, and the detection, prevention and treatment of female lower urinary tract disorders and pelvic floor disorders. AUGS members are practicing physicians, nurse practitioners, physical therapists, nurses and health care professionals, as well as researchers from many disciplines, all dedicated to improving the urogynecologic health of women.
www.augs.org

Bladder Cancer Web Cafe
The goal of this bladder cancer specific website is to help you find answers, relieve some of the fear, reinforce hope and to help you or your loved one find the best path on a difficult journey.
www.blcwebcafe.org

CURE: Coalition for Urologic Research and Education
CURE was created to enhance urology research to improve care and treatment of patients with urologic disease. The group represents tens of thousands of patients, researchers and health-care providers working in partnership to pass the Training and Research in Urology Act.  Visit this site to find out more about legislation that is pending before Congress that would create a new division at the National Institute of Diabetes & Digestive & Kidney Diseases of the National Institutes of Health (NIDDK-NIH).
www.auafoundation.org/advocacypage.asp

ERIC, Education and Resources for Improving Childhood Continence
The ERIC Webshop provides products for childhood bedwetting, daytime wetting, constipation and soiling to children, young people, parents and professionals.
www.ericshop.org.uk/default.asp

Families for Depression Awareness
The mission of Families for Depression Awareness is to help families recognize and cope with depressive disorders. Their purpose is 1) to help families recognize and manage the various forms of depression and associated mood disorders, 2) to reduce stigma associated with depressive disorders, and 3) to unite families and help them in coping with depression.
www.familyaware.org

HealthFinder.gov
A directory of reliable online health information sponsored by the governmental Office of Disease Prevention and Health Promotion
www.healthfinder.gov

Healthy-ojas.com
Prolonged diabetes in men and women may damage nerves, thus causing urologic problems that may include bladder problems and urinary tract infections. Follow the link for more information.
http://healthy-ojas.com/diabetes/bladder-problems.html

HealthyWomen.org
The National Women's Health Resource Center in 2009 is celebrating 20 years of providing women in-depth, objective, physician-approved information on a broad range of women's health issues. With more than 100 topics in its health library, including the latest medical advancements in each field, women often turn to them to answer their most pressing and personal health care questions. Through nationwide public education campaigns and personal assistance, NWHRC has helped women be informed health care consumers and has supported and promoted major milestones in the advancement of women's health for the past two decades.
www.healthywomen.org

The International Foundation for Functional Gastrointestinal Disorders
IFFGD is a nonprofit education and research organization whose mission is to inform, assist and support people affected by gastrointestinal (GI) disorders.
www.iffgd.org

International Painful Bladder Foundation
The IPBF is a non-profit, voluntary, umbrella organization, active worldwide, that promotes knowledge and awareness of interstitial cystitis (also known as painful bladder syndrome, bladder pain syndrome and hypersensitive bladder syndrome) and associated disorders among patients, patient support groups, health professionals and the general public. The IPBF promotes the interests of IC patients around the globe.
http://www.painful-bladder.org/

Maternal and Child Health Library
www.mchlibrary.info

The Menopause and Black Cohosh Information Center
Explore the Menopause and Black Cohosh Information Center. Here you'll find valuable articles regarding menopause, in-depth analysis of treatment options, and methods for effectively dealing with menopause.
www.menopause-black-cohosh.org

National Association for Continence
The National Association For Continence is an organization dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders. NAFC's purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence. You can visit their website at www.nafc.org.

National Family Caregivers Association
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to address the common needs and concerns of all family caregivers.
www.thefamilycaregiver.org

The North American Restroom Association
The American Restroom Association advocates for the availability of clean, safe, well designed public restrooms.
www.americanrestroom.org

NORD: The National Organization for Rare Disorders
NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases.
www.rarediseases.org

Society of Urologic Nurses and Associates
The Society of Urologic Nurses and Associates is a professional organization committed to excellence in clinical practice and research through education of its members, patients, family and community. For more information, visit SUNA's web site at www.suna.org To send email to suna@ajj.com

TTMed Urology
A fully integrated multimedia educational platform in urology used by specialist physicians, general practitioners, nurses and students to stay abreast of the latest advances in the urology field. www.ttmed.com/urology

Women's Health Foundation
The Women’s Health Foundation has sought to bring sensitive and stigmatized women’s health issues out of hiding and into the light. Guided by the mission "To improve the pelvic health and fitness of all women," WHF is continually taking steps to empower women with knowledge, and in turn, take control of their bodies. You can access their website at www.womenshealthfoundation.org.

World Continence Week
The World Continence Week website lists many non-profit organizations that provide information of interenst. You can access this list at www.hwww.worldcontinenceweek-usa.org/directory.html.

Wound, Ostomy, and Continence Nurses Society
The WOCN Society is a professional nursing society that supports its members by promoting educational, clinical and research opportunities to advance the practice and guide the delivery of expert health care to individuals with wounds, ostomies and incontinence. Visit the WOCN website at www.wocn.org.

Youth Rally
This organization provides a non-threatening environment where adolescents with bladder or bowel dysfunction receive education and psychosocial support that encourages independent living. Scholarships are available on their website. The rally is annual. www.Rally4Youth.org

Page last modified 18 June 2010