Not-for-Profit Organizations and Information Resources
NOTE: The information included on this website is not meant to be a substitute for medical care. Incontinence is a symptom. Always report incontinence to your healthcare professional and ask to be evaluated to determine the underlying cause of your incontinence.
If you are using adult absorbent products, such as adult diapers, but are experiencing financial hardship, you may have access to a local Diaper Bank for assistance.
For more on Diaper Banks and a directory of US Diaper Banks, click here and you will be taken to our Diaper Bank Directory and other information.
Below you will find links to key not-for-profit organizations that provide information on incontinence to enable you to learn more about treatments and management techniques. You will also find some for-profit resources that provide free information that has been reviewed by medical professionals or for special programs for those with incontinence.
180 Medical Scholarship Program
180 Medical is honored to have a scholarship program to help those with spinal cord injuries, spina bifida, transverse myelitis, and/or a neurogenic bladder. Realizing the financial burdens that exist for many of these families, the company has developed the 180 Medical Scholarship Program to honor these young adults who pursue goals of higher education.
The American Urogynecologic Society
The American Urogynecologic Society (AUGS), founded in 1979, is the premier society dedicated to research and education in urogynecology, and the detection, prevention and treatment of female lower urinary tract disorders and pelvic floor disorders. AUGS members are practicing physicians, nurse practitioners, physical therapists, nurses and health care professionals, as well as researchers from many disciplines, all dedicated to improving the urogynecologic health of women.
The American Urological Association Foundation
The AUA Foundation is the world's leading nonprofit urological health foundation—and the official foundation of the American Urological Association. They partner with physicians, researchers, healthcare professionals, patients, caregivers, families and the public to support and improve the prevention, detection and treatment of urological diseases. The site hosts a "Find a Urologist" directory.
The AUAF released a monograph on stress urinary incontinence May 2011, which is available here.
They also have a website devoted to over-active-bladder (OAB), which was launched June 2012.
Bladder Cancer Web Cafe
The goal of this bladder cancer specific website is to help you find answers, relieve some of the fear, reinforce hope and to help you or your loved one find the best path on a difficult journey.
Bowel Control Awareness Campaign
A new program to help patients and health care professionals feel more comfortable talking about bowel control problems is now available from the US National Institutes of Health. The Bowel Control Awareness Campaign and its Web resources raises awareness of bowel control problems, also known as fecal incontinence.
The Caregivers Parthnership
They have a section devoted just to incontinence resources. They offer the largest online library of helpful care giver resources - currently over 1,164 resources. Each one is fully vetted to ensure that it provides useful and meaningful information. This resource is continually updated to ensure it is current.
A website devoted to providing product information for US consumers.
Continence Product Advisor
The continence product advisor is designed to offer independent, evidence-based advice to people with incontinence and to health care professionals worldwide.
CURE: Coalition for Urologic Research and Education
CURE was created to enhance urology research to improve care and treatment of patients with urologic disease. The group represents tens of thousands of patients, researchers and health-care providers working in partnership to pass the Training and Research in Urology Act. Visit this site to find out more about legislation that is pending before Congress that would create a new division at the National Institute of Diabetes & Digestive & Kidney Diseases of the National Institutes of Health (NIDDK-NIH).
DrugWatch.com is a comprehensive Web site database featuring extensive information about thousands of different medications and drugs currently on the market or previously available worldwide. DrugWatch.com includes up-to-date information about prescription and over-the-counter medications and includes details about associated side effects to aid in the protection of patients and consumers.
ERIC, Education and Resources for Improving Childhood Continence
The ERIC Webshop provides products for childhood bedwetting, daytime wetting, constipation and soiling to children, young people, parents and professionals.
Families for Depression Awareness
The mission of Families for Depression Awareness is to help families recognize and cope with depressive disorders. Their purpose is 1) to help families recognize and manage the various forms of depression and associated mood disorders, 2) to reduce stigma associated with depressive disorders, and 3) to unite families and help them in coping with depression.
Information for women on fibroids. Incontinence can be a side-effect of fibroids. The site contains information on both and also a product for use by women with heavy menstrual flows and incontinence protection.
A directory of reliable online health information sponsored by the governmental Office of Disease Prevention and Health Promotion
Prolonged diabetes in men and women may damage nerves, thus causing urologic problems that may include bladder problems and urinary tract infections. Follow the link for more information.
The National Women's Health Resource Center in 2009 is celebrating 20 years of providing women in-depth, objective, physician-approved information on a broad range of women's health issues. With more than 100 topics in its health library, including the latest medical advancements in each field, women often turn to them to answer their most pressing and personal health care questions. Through nationwide public education campaigns and personal assistance, NWHRC has helped women be informed health care consumers and has supported and promoted major milestones in the advancement of women's health for the past two decades.
IBS Impact is a grassroots effort by people with Irritable Bowel Syndrome who are committed to greater public awareness and self-advocacy by people with IBS. Many people with irritable bowel syndrome experience varying degrees of fecal incontinence. www.ibsimpact.com
This website is a place for those with Irritable Bowel Syndrome to learn about new treatments, read product reviews and to share their stories. Also contains a blog on IBS.
The International Foundation for Functional Gastrointestinal Disorders
IFFGD is a nonprofit education and research organization whose mission is to inform, assist and support people affected by gastrointestinal (GI) disorders. The Foundation also provides an online community or bulletin board for those with incontinence.
International Painful Bladder Foundation
The IPBF is a non-profit, voluntary, umbrella organization, active worldwide, that promotes knowledge and awareness of interstitial cystitis (also known as painful bladder syndrome, bladder pain syndrome and hypersensitive bladder syndrome) and associated disorders among patients, patient support groups, health professionals and the general public. The IPBF promotes the interests of IC patients around the globe.
Managing Life with Incontinence - Worldwide Resources Listing
This is a listing of country-by-country patient support and professional organizations that have an expressed interest in helping people with incontinence. They are listed alphabetically by country.
Maternal and Child Health Library
Mayo Clinic on Managing Incontinence (2013 edition) is a 224 page hard-cover book that provides you wiht a complete guide to successfully managing incontinence. It explains the causes of incontinence and what you can do to relieve your symptoms and enjoy a better quality of life. Order the book on the Mayo Clinic website.
The Menopause and Black Cohosh Information Center
Explore the Menopause and Black Cohosh Information Center. Here you'll find valuable articles regarding menopause, in-depth analysis of treatment options, and methods for effectively dealing with menopause.
National Association for Continence
The National Association For Continence is an organization dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders. NAFC's purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence. NAFC provides an online community for those with incontinence. You can visit their website at www.nafc.org.
National Family Caregivers Association
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to address the common needs and concerns of all family caregivers.
The The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health of the U.S. Department of Health and Human Services. Established in 1987, the Clearinghouse provides information about diseases of the kidneys and urologic system to people with kidney and urologic disorders and to their families, health care professionals, and the public. The NKUDIC answers inquiries, develops and distributes publications, and works closely with professional and patient organizations and Government agencies to coordinate resources about kidney and urologic diseases. Publications produced by the Clearinghouse are carefully reviewed by both NIDDK scientists and outside experts. Access the website at: kidney.niddk.nih.gov/
The North American Restroom Association
The American Restroom Association advocates for the availability of clean, safe, well designed public restrooms.
NorthShore Care Supply
Provides a page of resources for caregiving, and also a very helpful resource for those seeking to understand how to apply and secure Social Security Disability Benefits.
NORD: The National Organization for Rare Disorders
NORD is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases.
Society of Urologic Nurses and Associates
The Society of Urologic Nurses and Associates is a professional organization committed to excellence in clinical practice and research through education of its members, patients, family and community. For more information, visit SUNA's web site at www.suna.org To send email to firstname.lastname@example.org
A fully integrated multimedia educational platform in urology used by specialist physicians, general practitioners, nurses and students to stay abreast of the latest advances in the urology field. www.ttmed.com/urology
Women's Health Foundation
The Women’s Health Foundation has sought to bring sensitive and stigmatized women’s health issues out of hiding and into the light. Guided by the mission "To improve the pelvic health and fitness of all women," WHF is continually taking steps to empower women with knowledge, and in turn, take control of their bodies. You can access their website at www.womenshealthfoundation.org.
World Continence Week
The World Continence Week website lists many non-profit organizations that provide information of interenst. You can access this list at www.hwww.worldcontinenceweek-usa.org/directory.html.
Wound, Ostomy, and Continence Nurses Society
The WOCN Society is a professional nursing society that supports its members by promoting educational, clinical and research opportunities to advance the practice and guide the delivery of expert health care to individuals with wounds, ostomies and incontinence. Visit the WOCN website at www.wocn.org.
This organization provides a non-threatening environment where adolescents with bladder or bowel dysfunction receive education and psychosocial support that encourages independent living. Scholarships are available on their website. The rally is annual. www.Rally4Youth.org
Page last modified 24 May 2013